My 40-By-40 List

Friday, June 26, 2009

Cancer, like any threat to one’s survival, can really mind-screw you. When you’re diagnosed, you might find yourself thinking that life after treatment will never be as sweet as it could be, or that there will be things in your life that are suddenly unreachable or unimaginable, just because you’ve had cancer.

I’m here to tell you, that is simply not true.

When I was 27 years old, I did my first triathlon and first marathon in the same year. All my friends were turning 30, bemoaning the end of their 20s, and, what they thought, were the “best years” of their lives. Looking ahead to my own 30th birthday, I decided I wasn’t going to hit 30 like that. I decided to do 28 more athletic events over the next two years, committing to “30-by-30”. I finished 7 triathlons, 3 bike rides, numerous 5Ks and 10Ks, and 3 Providian Relays. My 30th birthday ROCKED, because I was celebrating life every minute up to it!

One of the the lowest points in my battle with cancer was when I Googled “5-year Survival Rates for Stage 3 Breast Cancer.” The number came back: 67%. I have a 67% chance of being alive by my 40th birthday, I thought to myself.

With one number, cancer tried to take my hope for the future away. With another, I’m trying to take it back. That number? 40. How many women do you know who are looking forward to their 40th birthday? Count me among them.

For most breast cancer survivors, if you can make it to the 5-year survival mark, your long-term survival odds increase significantly. So I’m going to make these next 5 years count with another goal: 40-by-40. Part “bucket list,” part personal challenge (and, part Fear Factor), my 40-by-40 is a celebration of who I am, what drives me, and what I have to live for.

I’m not going to let cancer take away my hope for the future.

Are you with me?

Here’s the list:

1. Do a Susan G. Komen Walk
2. Do an Avon Walk
3. Do the Mt. Tam Peak Hike
4. Run the NYC Marathon
5. Do the Napa Tri with Kristy Seltzer
6. Do an Olympic triathlon with Misha McPherson
7. Run the Disney Princess Half Marathon at WDW
8. Climb Mt. Kilimanjaro
9. Innertube the Russian River
10. Take a Road Trip across the USA
11. Go Skydiving with Ian Fuller
12. See an Oprah show with Loren Madden
13. Go on a Chocolate Tour of Paris with Anne Barrow
14. Go to Graceland on my birthday (I have Elvis’ birthday)
15. Swim with my friend Ian’s dolphins (he is a dolphin trainer)
16. Go to an Oktoberfest Celebration
17. Bring my goddaughter out to where I live for a visit
18. Learn how to figure skate
19. Kayak a river with First Descents
20. Go to a concert at Red Rocks Amphitheater
21. Build a Rube Goldberg machine
22. Rock-climb in Moab, Utah
23. Visit 20 breweries in Colorado
24. Ski in Vail with my sister
25. Live in Boulder, Colorado
26. Have a job where I can ride my bike to work
27. Have my own place again
28. Go all out for Halloween
29. Sell my house in Kaua’i
30. Go back to Kaua’i to empty out my storage unit
31. Perfect my chocolate chip cookie recipe
32. Reconnect with Katie Birkholz
33. Play on a community sports team
34. Host a monthly movie night with a theme
35. Have an amazing 40th birthday party
36. Make it to 5 years cancer-free
37. Go to Tamika Felder’s wedding
38. Speak at a survivor conference
39. Get a great job with awesome benefits
40. Write & publish a book

 

The Happiness Lock

Tuesday, June 2, 2009

So, my hair is growing in. Actually, it’s *been* growing in. I’m still not comfortable walking around without a hat (and yet, I put videos on YouTube of me without one, interesting….). Still, it reminds me that my body is recovering.

My body is recovering. How powerful a statement is that? Lately, I have gotten in the habit of wording things in the present tense. Not “My body will get better” or “I am going to heal,” but “My body IS recovering.” Right now, right this very second – with every hair cell that pushes its way out of my scalp! For all his talk about ditching minimum-wage activities and hundred-thousand dollar watches, I think what all these MLM seminar leaders are really teaching, beneath the how-to-be-a-millionaire smoke and mirrors, is that the language you use, the words you speak, are of critical importance to your success in any endeavor. Are you someone who says, “As soon as I ____, things will be better…”? What statements like this do is put your brain in a permanent state of anticipation, not a permanenet state of action. You are contstantly anticipating the day when things in your life will get better, but they never get better, because you are never taking action!

Have you ever heard the expression that in our dreams, we are the writers, directors, and actors? I have a better metaphor – our lives are courtrooms, and we are the defendant, the plaintiff, the judge, jury, and attorneys. Every moment of our lives, we are making the case for beliefs that we uphold. We look for evidence, and deem it relevant or irrelevant depending on those beliefs. Do you think marriage is an outdated, sexist institution? Then you will seek out evidence of it and IGNORE evidence to the contrary, just to uphold your belief. Even when the knife has fingerprints from the defendant and the victim’s blood all over it, you will say, “Illegal Search! This Evidence Is Inadmissible!” You will look at someone in a happy, giving, joyful marriage, and say that they are an exception, a fluke, or a lie, just to maintain your belief.

One of my favorite quotes is, “Reality is created by Validation.” We make choices every day about where that validation comes from, and we accept or reject the validation based on our evaluation of the evidence presented (which is, of course, accepted or rejected based on our beliefs). If we believe we are bad people (based on what we deem “credible” evidence, like, say, an abusive spouse’s opinion), we might also then believe that God gave us cancer to punish us. A sane person would tell us, “That’s ridiculous!” If we believed we deserved it, though, and believed it with enough fervor, we would dismiss our well-meaning friend’s opinion as uninformed. “You just don’t know how bad I am,” we would say to ourselves. “I do deserve this, and that’s why I have it.”

When bad things happen to good people, it’s easy to blame God, but it’s even easier to blame ourselves. Why? Because it gives us the illusion of control. If you got this because you’re bad, then you can get rid of it by being good. Right? So, basically, you think you can manipulate God’s will by changing your behavior? That’s kind of arrogant, isn’t it? Or is it ignorant? Maybe, shit just happens. Every day. And there’s nothing you can do but roll with the punches. That’s scary, though. It’s much more comforting to imagine we can control God by living a certain way, like happiness is some kind of combination lock we can figure out, isn’t it? That’s not the way it works, though. The sooner we accept that, the easier it gets to swerve when life throws you a curve.

Some of you might disagree, so here’s the evidence, and it’s undisputable: bad things happen to good people. All the time. You can be living a right and good and honest life and still get sick with a disease you don’t deserve. So what? How are you going to respond? Are you going to fight it? Are you going to yell at God? Get angry? Sit around and have a pity party? Good luck. I can’t think of an example where any of that’s actually worked for anyone or made their life happier.

The only thing that works is this: get busy living your life. Stop crying and feeling sorry for yourself – that’s just selfishness and it does no one any good, especially you. Believe with all your heart that you deserve all the happiness and goodness and abundance in the universe, and get out of that darkness so you can get busy living the life you DO deserve (and who says that you can’t be fighting cancer AND be happy?!) Then, look back and create a road map of your journey, so you can help others find their way out. There are a millions ways to get to a happy life. Find yours, then share it.

How to Get Through Chemo

Wednesday, May 20, 2009

I was going to title this post, “How to Beat Cancer,” but, I think that’s premature, considering I’m not 5 years out yet. Still, time will tell if the same strategy applies. What I know now is How to Get Through Chemo.

Chemotherapy is no picnic. It’s hard enough, as a woman, to lose your breasts, and if chemo takes your hair, your eyebrows, and eyelashes, it’s even harder. When you look in the mirror, you don’t even recognize yourself – on a good day, you’re an extra from I Am Legend. On a bad day, you’re Uncle Fester. Or maybe it’s vice-versa. Either way, you feel like a freakshow, and all you want to do is stay home and curl into a fetal position.

There is another factor, of course. Many women facing breast cancer are (like me) real “Type-As.” We are the driven, strong ones everyone else relies on, and the worst part of getting sick is entertaining the idea that we might (gasp!) be mortal. It’s hard enough facing the fact ourselves, but letting our friends in on the secret?! Or worse, our family?! Unthinkable!!

The worst thing you can do after a breast cancer diagnosis is hole up. I mean it: YOU MUST NOT RETREAT. It’s so so SO tempting to batten down the hatches and hide away until your hair grows back, to turn down requests to accompany you to chemo because you don’t want people to see you vulnerable. It’s the WORST thing you can do and you will have a terribly hard time Getting Through Chemo alone.

I’ve been where you are. I’ve made it through the deaths of two parents and four grandparents, two financial crises, seven triathlons, three careers, two marathons, a graduate degree and nursing my only sibling through a horrible divorce ALONE. I have carried burden after burden all by myself; I pride myself on being able to pull my own weight in any situation and when I was diagnosed with Stage IIIA Triple Negative Breast Cancer 3500 miles away from all my family and most of my friends, I told myself, “I can get through ANYTHING all by myself, and cancer is no different.”

I’m here to tell you: I was WRONG, and I am incredibly lucky I wasn’t dead wrong.

Cancer is NOT the time to bravely soldier on alone. Three days after my second Taxol treatment, after four very tough cycles of Adriamycin and Cytoxan, I was hit with the worst depression I’ve ever experienced in my life. I found myself crying hysterically at the foot of my bed, wanting to wash the last of the Vicodin from my lumpectomy surgery with the last of the tequila in my freezer. I felt so helpless and hopeless, I wanted to walk into the woods behind my house, curl up into a ball, and never wake up.

I credit three people with saving my life that weekend: my roommate, a fellow survivor, and one of my chemo nurses. My roommate sensed something was wrong when I woke up the next morning, and asked me to stop by her office before my chemo appointment that afternoon. When I got there, she introduced me to her coworker, who was a ten-year survivor of Stage IV breast cancer. I burst into tears when I met her, and told her I was terrified of the thoughts I had been having. She told me that she’d battled with depression during her chemo also, then looked me straight in the eye and said, dead serious, “You have to call in the troops.” I went to chemo and, instead of putting a brave face on for my nurses, I let myself cry in front of them, and confessed I wasn’t having a good day. For someone like me, who was always cracking jokes and making people laugh in Infusion Services, it was a huge admission. Chemo nurses, of course, are a special breed, and one of my nurses offered to do a healing touch therapy on me while I was receiving my meds (something they probably don’t teach at medical assistant schools). I took her up on it and when I woke up after treatment, I felt like a weight had been lifted from my shoulders.

I’ll never know if it was my roommate reaching out to me, her coworker giving me permission to ask for help, or my reaching out to my chemo nurses that lightened the load I was carrying. What I do know is this: when you feel like “turtling”; when you want to hide from your friends and family, rather than face them in a weakened, vulnerable state, you must do the OPPOSITE: you must REACH OUT. Let them be the source of strength they want to be for you!

In my moments of darkness, I asked the same question Jesus asked on the Cross: “My God, my God, why have you forsaken me?” I felt so alone, so far away from what was supposed to be the Source of my strength at my lowest point. What I didn’t know was that He had surrounded me with angels to be there for me in His place. God loves us through other people. We just have to be open and receptive of that love. All around me were people waiting for the opportunity to be my rocks of Gibraltar, and if I had kept on insisting I didn’t need anyone’s help, I might have thrown myself into that pit of despair, for fear of appearing weak! Don’t do it. Don’t worry so much about appearing strong that you break from the pressure. People all around you love you no matter what, and are waiting to be there for you, if you let them. Call in the troops. You won’t win the battle without them.

This is How You Get Through Chemo: by Opening Up, not Holing Up.

 

If you doubt the power of strength, power, and beauty in numbers, check out this video: Playing For Change.

The Case For White-Knuckling It

Tuesday, May 19, 2009

I realized today that sometimes, you just have to white-knuckle it.

I have a few interns graduating from high school in Richmond, CA. If you’re not familiar with Richmond, it’s a very tough place to grow up. Seated right next to Chevron’s biggest petroleum refinery west of the Mississippi, it’s full of toxic chemicals. The parks are run down and while there is change coming to the City, it wasn’t changing much when many of my students were growing up. Sometimes, I think it’s a miracle they’ve made it this far in one piece, with their sanity intact.

I went down to a local JC today to sort out a clerical error for one of my kids – someone used his ID number to register, then drop out of a class. They say he owes them $21 for a on-unit course, and he can’t register for classes at a sister JC closer to home until it’s paid. I mean, this kid doesn’t have $8 for the BART to come out here to fix it, let alone $21 to pay it. He’s saving every dime so he can get his first apartment, and being a young African-American man from Richmond, even one with a great resume, he’s having trouble finding a job in this economy. He asked me, frustrated beyond belief, why everything has to be so hard. Ah, kid, I wanted to say, I am so not the one to ask right now.

The reason is this: I’d just realized I had done the math wrong this month, and I have three chemo sessions left, not two. Then, my doctor told me that the thing on my tailbone I thought was a staph infection from my gym’s nasty locker room was actually shingles. Which is also why the headaches I’ve been getting are not going away no matter how much water I drink. The best part is, I can’t take anything but over-the-counter pain medication, because I have to drive myself to the doctor four times a week for shots, bloodwork, and chemo.

If you’ve ever put pressure on a shingles-inflamed nerve, it’s not pleasant. Not at all. Which is why I am wincing when Marlon asks me why everything has to be so hard, I know how he feels. I know the feeling that it’s just not going to get any easier anytime soon. In those times, I now realize, you just have to white-knuckle It. You just have to get through it, because no amount of vision-boarding or Madonna-album-listening, or positive-affirmation-ing is going to make the pain and frustration go away.

The worst pain I’ve ever been in was the week I had my gallbladder taken out. I didn’t even have a gallstone; I had like “gall-sludge” – a slimy, grainy-textured, tar-sand-like substance clogging my bile duct. The pain was excruciating; I was out of my mind from the second I walked into the hospital to the moment the morphine took effect. It felt like an alien made of boulders was trying to claw its way out of my chest and I was literally watching the second hand on the clock, thinking two more minutes and the nurse will be here, thirty more seconds and she’ll find a vein, five more seconds and it will be in my bloodstream, knowing that as soon as my body metabolized it, the pain would abate.

Knowing there will be an end to pain makes it so much easier to get through, of course. It’s thinking that life is going to be hard forever that makes you want it over. In the Book of Job, the Devil says to God, “You know, even your best followers only follow you because their lives are blessed. If you took away everything they had, they wouldn’t be so penitent.” So God says, “Okay, fine – there’s Job – go to town. Take away anything you want from him.” And Job loses everything – his kids, his business, his house, all of it. Still, Job believes in God and doesn’t question Him. Finally, Job’s friends are like, “Dude, you are not perfect, but still, how can you deserve this? You need to take it up with God, you need to ask Him what you’ve done to be so punished.” God, hearing Job’s friends question His judgement, interrupts them and says, “Who is this that darkeneth counsel by words without knowledge?” (which would be Hebrew for “Who are YOU to question ME?”)

Theologians typically suggest that the central question of the book of Job is, “Is misfortune always divine punishment?” and in my opinion, the Book of Job says no. We’re not at the mercy of a capricious God, and we’re not always bearing the burden of His wrath. In times of misfortune, I take comfort in the Book of Jeremiah, where God says He has a plan for me. I may not know what it is; it may be confusing sometimes. I may feel like the Karate-fucking-Kid, waxing on and waxing off and painting houses all day while He’s out fishing! But I have to trust that it’s all part of His plan, and that, like Job, faith and trust are rewarded. Even if you want to get all existential and say the only reward for faith in a Higher Power is feeling like misery isn’t pointless…. sometimes, that can be enough to make you want to go on living.

So many times in my life, I have been able to use past disasters to put things in perspective, either for myself or for others. Time and again, I have made it through hard times to enjoy an abundant and happy life. We never know what God has planned for us; we can only take comfort in what is, and pray for strength, patience, and understanding if it isn’t what we want. I told Marlon, when he asked me why life has to be so hard, that sometimes it’s hard, and sometimes it’s easy, and the only thing we can control is our reaction to it. When you don’t think you have the strength to bear a burden, and none of your positive thinking is helping, the answer is to hold on, let the tears fall, and white-knuckle it ’till it’s over.